Equipment & Supplies
Equipment commonly provided to people with spinal cord injury [SCI] includes wheelchairs, cushions, and devices for self-care. Each person will require different types of equipment. Keep the following things in mind when you’re considering equipment needs.
Equipment can—
- increase your independence;
- protect you against injury;
- protect your skin;
- provide postural support and prevent deformity;
- help prevent injury to a caregiver;
- improve your comfort; and
- require a lot of maintenance.
Additional Points About Equipment (supplement material)
You’re the consumer
Looking to purchase a bed, commode, mattress, wheelchairs, cushions and environmental control devices? How are you going to go about it, and how are you going to make all those decisions?
If you are replacing items purchased after your discharge from the Rehab Centre, your initial thought might be to replace broken or damaged articles with identical equipment to what you originally purchased. Think again. Over time your needs often change. What was perfect for you when you were discharged may now do only an adequate job. It is a good idea to look around as manufacturers are constantly updating and designing new equipment.
If you don’t know where to begin, check your yellow pages (also now called yellow media) for suppliers, contact your home care coordinator or Canadian Paraplegic Association (CPA) representative.
If you have equipment-related questions or concerns, you can call the occupational therapy or physical therapy staff. If they cannot answer your questions, they will suggest other resources to help you. They can also advise you and other consumers against purchasing a product or service based on complaints.
Buying equipment is no different than buying a car. When doing so, you consider:
- price
- reliability
- warranty
- looks
- service record
- how you feel about the equipment.
You’re the consumer—it’s your choice.
How to make your choices
In dealing with your funding agency—for example Workers Compensation Board (WCB), extended health care or private insurance—be aware these are services to which you are entitled as a payer of taxes and insurance. Give your funding representatives a time line in which you expect to hear from them. If they don’t call, you call them. You are entitled to expect accountability.
In dealing with an equipment dealer, write up a contract specific to your needs. For example, when buying a wheelchair, your contract should state exactly:
- what the warranty covers
- if there is a charge for replacement parts
- the cost of servicing.
Both you and the dealer should sign the contract. This identifies expectations to which you are entitled. You are the consumer—you will be using and living with your choice of equipment for a long time. Ensure you make a wise purchase that will fit your needs for today and the future. It is your choice. Use your resources. Make an informed decision.
Your equipment is an extension of you. As a consumer, make sure it fits your needs by:
- knowing what you need and why
- taking advantage of advice and assistance from your peers, agencies and professionals
- expecting accountability from funding agencies and suppliers
- evaluating your equipment and the process of acquiring it.
Getting Your Equipment and Supplies
Before ordering equipment:
- Know your funding source and what they will cover. As an inpatient, the social worker can help you with this.
- Find out if your funding provides for servicing.
- Trial various models of equipment with your therapist. As for details. Know all of the options available with that model, and what the standard features are.
- Speak to other consumers for their suggestions and their evaluation of equipment.
- Know the specifics of each item required and the names of the items desired.
- Find out about the warranty of each piece of equipment.
- Be aware of how your equipment will work with the rest of your equipment, e.g., will the wheelchair fit in the van?
- Find out from where your equipment is being ordered.
- Call the dealer and try to find a contact person with whom you can keep track of the status of your order.
After receiving your equipment
Learn about preventative maintenance and decide who will do it (you can pay someone to do this, do it yourself, or get your assistant to do it).
Set up a schedule for preventative maintenance. Know when your equipment will need replacing and allow time for financing, ordering and delivering.
Bowel and bladder supplies
Storage
- It is best to store supplies in a vertical closet. Organization that makes it easy to see and select items will assist you and others to find what you need easily.
- A closet that is close to the bed for efficiency, yet discrete enough for comfort is best. Distilled water, bladder care and bowel care supplies are best kept near the bed and/or bathroom.
- Keep supply areas tidy. It can be frustrating looking through three layers of supplies to find one thing. The items you use the most should be kept easily accessible and the things you don’t use often should be the least accessible.
- If hiring assistants, always do a thorough initial orientation to the storage area.
Ordering Supplies
- This task is simpler than you think. Keep a board on one of your cupboard doors that lists all your supplies. When an item is running low, it gets marked on the board.
- Running low could mean the last box, the last 10 or the last 2. This will depend on how much of each item you use in a given period of time. Many people record how much of each supply they use in one month.
- You may choose to order three months of supplies each time you order. If you have a lot of space, you may want to order more.
- If hiring assistants, they should let you know when any supply is low. This is a good time to not only order that supply but also review all of your supplies and see what else you should order. This will ensure you don’t run out and will make ordering more efficient.
- In the beginning, adjustments may be required. You may be short of one item and not another. Alter your numbers according to your need. It is helpful to work together with an assistant to order supplies.
- Always put away a small supply of essentials that you keep for emergencies just in case you forget to order something.
- You can order over the phone. Usually, people have one dealer they go through for their supplies. Try to have a consistent contact to make the process easier.
- Delivery is usually set by the supplier. For “special” not commonly used items, it is wise to always keep a certain supply. For example, if you use two sheets of a special dressing material at a time for pressure sores and usually have 10 sheets of it, buy 2 sheets as soon as you use them and keep your stock at 10.
- You may want to develop a relationship with your local drug store or pharmacy to see what they stock that you might access in an emergency.
Trying new products
- If a product is not working for you, investigate other options. Your regular dealer is a good place to start asking about other options. You can usually get a trial supply.
- There is also a network of resources you can use to find other options, such as CPA, peers and community agencies.
- Don’t forget that when you evaluate a new supply, think about:
- what you liked about the regular supply
- why you searched for a new product
- what you want out of a new product
Travelling
- Make a list! Think about everything you need. Your clipboard that lists all your supplies will come in handy.
- Add up everything you need (including back-up). For example, you’re going to 7 days. You have 3 bowel routines to plan for, you need 6 gloves, 2 suppositories, 6 blue pads per routine. Therefore, you need 18 gloves, 6 suppositories and 18 pads.
- If you’re going on a plane, carry your back-up supplies in your hand carry-on baggage just in case the airline loses your luggage.
- Any time you are leaving your primary residence, you have to think about back-up:
- back-up manual wheelchair
- back-up ventilator
- Depending on where you are going, having a broken down wheelchair or ventilator can be complicated.
- Find out who can service your equipment at the place you are going. Most wheelchair dealers would know or could find out who would be best to call for wheelchair repairs where you are going. They may also find out that there is no one to call at that location and this may affect how you prepare.
- Take extra fuses for the charger, ventilator and wheelchair. This can save you time and frustration.
- Find out the type of electrical outlets used if you are travelling outside North America. Sometimes the socket adapters you can pick up work adequately and sometimes they do not. Your equipment dealer may be able to help you with this.
- At your destination, you may be able to rent or borrow some equipment that you may not be able to take with you, such as a commode, bath seat or floor lift.
Financial problem solving/networking
You will be involved in buying equipment now and periodically in the future. Some of the questions you may ask yourself are:
- How do I pay for the equipment?
- Who can I approach for funds?
- Who can help me to find out about funding for equipment?
In dealing with funding problems for equipment, it is important to solve the problem in a “step by step” way. Here are a few tips on how to problem solve:
1. Identify the problem. Examples:
- I need funds for an electric wheelchair
- I would like to get a lift to assist with transfers, but my funding agency will not provide it.
2. Define the problem.
When defining the problem, answer 4 questions:
3. List the options you see for solving the problem.
4. Choose one option to try, and decide on who can help you find a solution for funding sources.
5. Decide on a specific plan of action. If you are not sure where to begin, contact some of these people:
- CPA counsellor
- Workers’ Compensation Board
- Local equipment dealer
- Local health unit
- Person with a disability
- Spinal Cord Program staff at Rehab Centre.
Keep track of all suggestions and follow up on them. Ask each person you contact if they can suggest any other resources that may assist you in solving your problem. To resolve your financial concerns, it is important to know who can provide the funds. Funding options will vary, depending on your personal situation.
In dealing with funding agencies, be aware of the services they can offer you In contracting funding/community agencies, here are a few helpful tips:
- Before you contract an agency, have access to some method of recording the name and title of the person and information that is given to you.
- Phone early in the day if possible.
- Clearly state your request.
- Have access to personal information that may be requested of you.
- If the agency cannot assist you, ask if they can refer you to others who may be of assistance.
When contracting funding agencies, find out the following information about them and record it for future use. Request the agency send you written information:
- What are the eligibility criteria to apply for funds?
- How do you apply for funds?
- How can you pursue an appeal process if your eligibility and/or funding is denied on questionable grounds (Remember the appeal process varies with each agency.)
If you have problems with an agency, there are people who can act as your “advocate”—representing your point of view. This can by your CPA representative, your local disability organization, or a friend.
Getting funding for equipment can be a simple process or a complicated and lengthy one. It can be frustrating at times, but be persistent. Use your network of contacts, be a knowledgeable consumer and know your rights.
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Source: Spinal Cord Injury, Alberta Education Initiative: Glenrose Rehabilitation Hospital & Foothills Medical Centre
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In the future, you may continue with the supplier who has provided you with good service or contact other vendors/suppliers in your yellow pages/yellow media.